Long-term conditions support

Long-term conditions support

  • When living with a long-term condition such as asthma, diabetes, arthritis, heart disease, multiple sclerosis or rarer disorders like congenital heart disease in children, support from others who know what you are going through can be very helpful.
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Here you will find links to some of the support groups available throughout New Zealand. In most cases, the information is sound and reliable.

Disclaimer: Some of these websites contain advertising, others may not have been updated recently and the people involved in each organisation and information made available can change regularly. If you are unsure of any information, always check with your doctor first.

A-B

Acoustic Neuroma Association of NZ(external link)(external link)
Acromegaly Society(external link)(external link)
ADHD support group(external link)(external link)
ADHD Association Inc.(external link)(external link)
Age Concern New Zealand Inc.(external link)(external link)
Burnett Foundation Aotearoa(external link)(external link)
Alcohol Drug Helpline New Zealand(external link)(external link) (ADANZ) 0800 787 797
Alcoholics Anonymous(external link)(external link)
Allergy New Zealand – National Volunteer Network(external link)(external link)
Allergy New Zealand(external link)(external link)
Alzheimers New Zealand(external link)(external link) 
Amputees Federation of New Zealand(external link)(external link) 
Anxiety support(external link)(external link) 0800 269 438 (0800 ANXIETY)
ANZMES Inc. - Associated NZ Myalgic Encephalopathy Societies(external link)(external link)
Arthritis New Zealand(external link)(external link) 
Arthritis Foundation of New Zealand(external link)(external link) what's on in your area
ASH NZ - Action on Smoking and Health(external link)(external link)
Asthma regional support groups(external link)(external link)
Asthma Societies throughout NZ(external link)(external link) Asthma Foundation 
Asthma New Zealand(external link)(external link)
Auckland Kidney Society(external link)(external link)
Auckland Sexual Health Service(external link)(external link)
Autism New Zealand Inc.(external link)(external link)
Balance - NZ Bipolar Network(external link)(external link)
Barnardos New Zealand(external link)(external link)
Bowel Cancer NZ(external link)(external link)
Bipolar Support Canterbury(external link)(external link)
Brain Injury Association of NZ Inc. (external link)(external link)
Breast Cancer Aotearoa Coalition(external link)(external link)
Breast Cancer Foundation NZ(external link)(external link)
Breast Cancer Support (external link)(external link)
Burn Support Charitable Trust(external link)(external link)

C-D

Cancer Society of New Zealand - Support Services(external link)(external link)
Carers NZ(external link)(external link)
Cerebral Palsy Society of NZ(external link)(external link)
Child Cancer Foundation NZ(external link)(external link)
Cure Kids NZ(external link)(external link)
City Councils(external link)(external link) - list of NZ City Councils
Cleft New Zealand(external link)(external link)
Coeliac New Zealand (external link)(external link)
Community Alcohol & Drug Services (CADS) Auckland(external link)(external link)
Continence Association of New Zealand (external link)(external link)
Cri Du Chat Support Group of Australia(external link)(external link)
Crohns and Colitis Support Group – Wellington(external link)(external link)
Cystic Fibrosis Association of New Zealand(external link)(external link)
Diabetes Auckland(external link)(external link)
Diabetes Exercise & Sports Association of New Zealand (DESA NZ) - Facebook page(external link)(external link)
Diabetes New Zealand(external link)(external link) 
Diabetes Youth NZ(external link)(external link)
Disability Information Service - Enable NZ(external link)(external link) 
Down Syndrome – NZ Down Syndrome Association (NZDSA)(external link)(external link)
NZ Drug Foundation(external link)(external link)
Dyslexia Foundation of New Zealand(external link)(external link)
Dyspraxia Support Group (Auckland)(external link)(external link)
Dystonia Patient Network (NZDPN)(external link)(external link)

E-G

Early Menopause (NZ) Support Group(external link)(external link)
Eating Difficulties Education Network (EDEN)(external link)(external link)
Eating Disorders Association of NZ(external link)(external link)
Ehlers-Danlos Foundation of NZ(external link)(external link)
Endometriosis New Zealand(external link)(external link)
Epilepsy New Zealand(external link)(external link)
Essential Tremor Support Group(external link)(external link)
Sexual Wellbeing Aotearoa(external link)
Fertility New Zealand(external link)(external link)
Fetal Alcohol Network NZ - Alcohol Healthwatch(external link)(external link)
Foundation for Alcohol and Drug Education (FADE)(external link)(external link)
Fragile X Trust(external link)(external link)
Gambling Helpline (New Zealand)(external link)(external link)
Crying Over Spilt Milk - Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust(external link)(external link)
Glaucoma New Zealand(external link)(external link)
Guillain-Barre Syndrome Support Group NZ Trust(external link)(external link)

H-J

HAE Australasia(external link)(external link) support for people affected by Hereditary Angioedema
Haemophilia Foundation of New Zealand(external link)(external link)
Halberg Trust(external link)(external link)
Health Action - Te Mana Taki Hauora(external link)(external link)
Health and Disability Commissioner(external link)(external link)  
Heart Children of NZ(external link)(external link)
Heart Foundation of New Zealand(external link)(external link)
Hepatitis Foundation of NZ(external link)(external link)
New Zealand Herpes Foundation(external link)(external link)
Higher Ground Drug Rehabilitation Trust(external link)(external link)
Huntington's Disease Associations of NZ(external link)(external link)
Immune Deficiences Foundation of New Zealand(external link)(external link)
IHC New Zealand(external link)(external link)
Immunisation Advisory Centre (IMAC): Immunisation facts and advice(external link)(external link)
Incontinence - NZ Continence Association(external link)(external link)
Insight Endometriosis(external link)(external link)

K-L

Kapiti Coast Health Services(external link)(external link) a range of local resources and group
Kidney Health NZ(external link)(external link)
Kidney Kids of NZ Support Group Inc. - Facebook page(external link)(external link)
Kidney Society - Auckland(external link)(external link) 
KidsHealth(external link)(external link) 
La Leche League New Zealand(external link)(external link)
Leukaemia and Blood Cancer NZ(external link)(external link)  
Libraries(external link)(external link) find a Library near you
LifeLine – 24-hour free phone support(external link)(external link)
Lung Health Auckland(external link)(external link)
Lupus online support group by Arthritis New Zealand(external link)(external link)

M-N

Macular Degeneration New Zealand(external link)(external link)
ManAlive(external link)(external link)
Maternity Services Consumer Council(external link)(external link)
Melanoma Foundation of New Zealand(external link)(external link)
Mental Health Foundation of New Zealand(external link)(external link)
Mental Health Foundation of New Zealand – Community Directories(external link)(external link)
Mental health community support groups(external link)(external link)
ME Society (NZ)(external link)(external link)
Migraine NZ(external link)(external link)
Miscarriage Support Auckland Inc.(external link)(external link)
Motor Neurone Disease Association(external link)(external link)
Multiple Sclerosis Society of New Zealand(external link)(external link)
Multiple Sclerosis Auckland(external link)(external link)
Muscular Dystrophy Association of New Zealand(external link)(external link)
National Foundation for the Deaf Inc.(external link)(external link)
National Poisons Centre (NZ) – 24hr emergency free phone (poisoning)(external link)(external link)
Natural Fertility New Zealand(external link)(external link)
Neurological Foundation of New Zealand Inc. (external link)(external link)
Rare Disorders NZ(external link)(external link)
Nutrition Foundation New Zealand(external link)(external link)

O-P

Obsessive Compulsive Disorder (OCD) Support(external link)(external link) 
Parent to Parent New Zealand(external link)(external link)
Parent Support Groups A to Z(external link)(external link) KidsHealth NZ
Parkinsons New Zealand(external link)(external link)
Psoriasis Association of New Zealand email psoriasis@xtra.co.nz
Organ Donation New Zealand(external link)(external link)
Osteoporosis New Zealand(external link)(external link)
OUTLine NZ (gay/lesbian phone counselling)(external link)(external link)
Pain Action in New Zealand Inc.(external link)(external link)
Parents Centres NZ Inc.(external link)(external link)
Parkinson's New Zealand(external link)(external link)
People First(external link)(external link)
Plunket Society (Royal NZ) – includes PlunketLine(external link)(external link)
Polio NZ Inc.(external link)(external link)
Positive Women Inc (external link)(external link) (Supporting Women and Families in New Zealand living with HIV and AIDS)
Post Natal Distress Support Network Trust(external link)(external link)
Prader-Willi Syndrome Association of NZ(external link)(external link)
Pregnancy Help(external link)(external link)
Presbyterian Support (Northern)(external link)(external link)
Prostate Cancer Foundation of NZ(external link)(external link)
NZ original psoriasis, psoriatic arthritis(external link)(external link)

Q-S

Quit Group(external link)(external link) (quit-smoking helpline, information and support)
Relationships Aotearoa(external link)(external link)
Rescare New Zealand Inc.(external link)(external link)
Retina New Zealand Inc(external link)(external link)
Blind Low Vision NZ(external link)(external link)
Sands New Zealand(external link)(external link) (Pregnancy, Baby and Infant Loss Support)
Scleroderma New Zealand(external link)(external link)
SeniorLine(external link)(external link) (residential care info for over-65s)
Skylight(external link)(external link)
Sleep Apnoea Support Australia/NZ(external link)
Speak Easy Association Inc. (NZ)(external link)(external link)
Stroke Foundation of New Zealand Inc.(external link)(external link) Regional Support Groups 
Suicide Prevention Information Service NZ (SPINZ)(external link)(external link)
Sweet Louise - Positive lives with breast cancer(external link)(external link)

T-Z

Tourette's Association New Zealand(external link)(external link)
The National Depression Initiative(external link)(external link) online self help resources
The NZ HPV Project(external link)(external link)
Tinnitus NZ Facebook support group(external link)(external link)
Tourette's Association of New Zealand(external link)(external link)
Weight Watchers NZ(external link)(external link)
What’s Up - free phone help for kids(external link)(external link)
Women's Health Action(external link)(external link)
Yellow Brick Road(external link)(external link) (formerly Supporting Families NZ)
Youth Depression Website - The Low Down(external link)(external link) - range of resources including online chat and email support
Youthline – counselling for young people(external link)(external link)

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Credits: Healthify editorial team. Healthify is brought to you by Health Navigator Charitable Trust.